The Director of the Special Needs Chapter of the theAsianBridge is Alyssa Ericksen. Please direct all calls regarding special needs to or email her at brennensmom@yahoo.com.
Click here to go directly to Special Needs Resources. |
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About the Director...
In August of 2005, we were referred our first child, a 15 month old girl with a congenital heart defect. We met our “Ping-Ping” in Jiangxi in March of 2006.
Shortly after returning from China, I saw a little boy in a web page, and watched sadly as his file was returned to China twice without finding a family. His file then arrived at CCAI, our agency. We decided that he was ours, and we were blessed to meet our new 4 year old son in Guangxi in December of 2007. He has Goldenhar syndrome – a complex set of birth defects including microtia/atresia, hemifacial microsomia, skeletal abnormalities and eye tumors. His challenges will be great, but his joyful spirit and loving heart will carry him through the many surgeries and therapies ahead. |
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I am thrilled to be a part of theAsianBridge, gathering and evaluating information resources for prospective parents of special needs children. I earned an MLS (Master’s degree in Library Science) in 2004, and look forward to giving my research skills some exercise in the service of bringing children into their forever homes.
Special Needs Resources
Provided by The 2009 Graduating Class of the Elmhurst Life Skills Academy
ADD/ADHD Resources
http://borntoexplore.org/
The goal of this site is to consider the many possible sources of ADD-like behaviors, including natural temperament traits, diet, and other factors, because there is rarely a case of "pure" ADD.
http://adhd.com.au/
A resource website on the investigation and treatment of underlying causes of ADHD, Adult ADHD, Learning Difficulties Dyslexia and IBS.
http://familydoctor.org/online/famdocen/home/children/parents/behavior/118.html
ADHD: What Parents Should Know
http://familydoctor.org/online/famdocen/home/children/parents/behavior/103.html
ADHD Medicines
http://nichcy.org/enews/foundations/ADHD101.asp
A Web resource page of the National Dissemination Center for Children with Disabilities
http://www.webmd.com/add-adhd/default.htm
Symptoms and treatment options on ADD/ADHD
http://schwablearning.org/resources.aspx?g=1&s=4
A parents guide to helping children with learning disabilities
Autism/Asperger Syndrome
http://autism.com
The Autism Research Institute (ARI), is primarily devoted to conducting research, and to disseminating the results of research, on the triggers of autism and on methods of diagnosing and treating autism and provide research-based information to parents and professionals around the world.
http://www.usd.edu/cd/autism/autismhb.pdf
Autism Spectrum Disorders Handbook
http://autism.org/asperger.html
Asperger’s Syndrome - Center for the study of Autism, written by Stephen M. Edelson, Ph.D.
http://www.accessscience.com/content.aspx?id=YB040835
Research update
http://www.webmd.com/mental-health/tc/aspergers-syndrome-topic-overview
Asperger’s Syndrome – Topic Overview
Cerebral Palsy
http://www.cerebralpalsytreating.com/
Causes, prevention, care & treatment information
http://orthoinfo.aaos.org/topic.cfm?topic=A00260
orthopaedic information
http://cpconnection.com/Therapies/HBOT/index.htm
General questions on Hyperbaric Oxygen Therapy for Cerebral Palsy
http://deafblind.com/cerebral.html
Cerebral Palsy and Children with Vision and Hearing Loss
http://cerebralpalsy-educationandsociety.com/03-education.html
Social and education issues surrounding cerebral palsy
Cleft Lip/Cleft Palate
http://www.dmoz.org/Health/Support_Groups/Conditions_
and_Diseases/Facial_Differences/Cleft_Lip_and_Palate/
Support groups for cleft palate
http://hopkinsmedicine.org/craniofacial/Gateway/CleftLip.cfm
The Center for Craniofacial Development and Disorders was established at The Johns Hopkins University to provide a comprehensive program in craniofacial research, education, and clinical care.
http://www.faces-cranio.org/disord/cleft.htm
The National Craniofacial Association
http://childrensdisabilities.info/cleft-links.html
Cleft Palate and Cleft Lip Resources
http://samizdat.com/pp3.html
Cleft Lip/Cleft Palate –Internet Resources
Congenital Heart Defects in Children
http://americanheart.org/presenter.jhtml?identifier=12012
Fact Sheet
http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/cardiac/phyex.html
Cardiovascular Disorders from Lucile Packard ‘s Children Hospital at Stanford
http://americanheart.org/presenter.jhtml?identifier=4885
Feeding your infant with congenital heart disease
http://tchin.org/index.htm
Congenital heart information network
http://www.chdinfo.com/
Promoting awareness of congenital heart defects
Deafness and Hearing Loss
http://www.nichcy.org/pubs/factshe/fs3txt.htm
Fact sheet including resources and organizations
http://gupress.gallaudet.edu/annals/
A professional journal dedicated to quality in education and related services for deaf or hard of hearing children and adults.
http://clerccenter.gallaudet.edu/InfotoGo/563.html
Helpful books and resources for parents of children who are deaf or hard of hearing
http://ahaanet.com/children.asp
Articles of interest
http://www.hearingexchange.com/blogs/?p=36
Workshops for families of children with hearing loss birth to 5
http://www.familyvillage.wisc.edu/lib_deaf.htm
The who, what and where
Spina Bifida
http://healthlink.mcw.edu/article/921988096.html
General descriptions from the Medical College of Wisconsin
http://ninds.nih.gov/disorders/spina_bifida/detail_spina_bifida.htm
Spina Bifida fact sheet
http://partnerstx.org/Resources/Spina_Bifida/Main.htm
Frequently asked questions about Spina Bifida
http://kidshealth.org/parent/system/ill/spina_bifida.html
Types of Spina Bifida, diagnosing and treatments
http://www.sbaa.org/site/c.liKWL7PLLrF/b.2642297/
k.5F7C/Spina_Bifida_Association.htm
Spina Bifida Association Home Page
http://www.sbaa.org/site/c.liKWL7PLLrF/b.2642345/k.C49F/Clinics.htm
Clinics across the country
http://search.medscape.com/emedicine-search?queryText=spina%20bifida
Articles
Chicagoland, State of Illinois and National Special Needs Resources
Chicago Support Groups
Chicago Support Groups ~
http://chicago.parentzone.com/parentresources.asp?prid=47
Chicago Area Special Needs Camps ~
http://www.chicagokids.com/campguide/specialneeds.html
Chicago Parent.com Resources ~
http://www.chicagoparent.com/search.asp?keyword=Special%20Needs
About.com Parenting Special Needs Children ~
http://specialchildren.about.com/
National Dissemination Center for Children with Disabilities ~
http://www.nichcy.org/
Illinois Department of Human Services ~
http://www.dhs.state.il.us/page.aspx
Illinois Early Childhood Intervention Clearinghouse ~
http://www.eiclearinghouse.org/about.php
Department of Human Services Office Locator ~
http://www.dhs.state.il.us/page.aspx?module=11
NICHCY, Illinois State Resources ~
http://www.nichcy.org/stateshe/il.htm
Illinois Department of Human Resources, Early Intervention ~
http://www.dhs.state.il.us/ei/
Illinois State Board of Education (ISBE) information, research, & resources ~
http://www.isbe.net/spec-ed/html/categories.htm
Special Education Resources for Parents ~ Illinois State Board of Education ~
http://www.isbe.net/spec-ed/html/parents.htm
Kids Health Organization Kids with Special Needs ~
http://kidshealth.org/kid/feeling/friend/special_needs.html
Centers for Disease Control Listing ~
http://www.cdc.gov/az/a.html
Special Needs Grants from the Community Health Partnership ~
http://www.communityhealthpartnership.org/
programs/special/special_needs.html
Grants.gov
http://www07.grants.gov/aboutgrants/about_grants_gov.jsp
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